peeperjj's Journal, 22 October 2020

Pizza last night. Also an increase in salt lately as the dr wants me to try that next. Seems silly though since I’m not lifting or in the garden so I’m not having the issues I was.

Had my 4 year checkup with oncology yesterday. Well actually it was supposed to be the 3.5 checkup as we’ve gotten off schedule with the dr doing more trials and less clinic then covid closing stuff down and pushing it back more. But 11/2/2020 is 4 years since they found the cancer so... 3.5 years post chemo. Anyway I have more fluid buildup. Showed her the Oct 4th video and how it was now. She didn’t seem worried but said I was right and there’s more fluid. Can’t ‘rest and relax’ any more than I am unless I literally don’t leave my house and quit shopping, cooking, laundry and volunteering. I can’t imagine those things causing over use of that arm and my chest. 🤷‍♀️ I saw the nurse and I have to say I think I prefer her to my oncologist. She’s so young yet very knowledgeable and was easy to talk to. Said I could come back as much as I felt I needed to even if the policy is 5 years. Oncologist has been trying to get me to see my pcp, who has no experience with cancer, only the last two years. Found out OU has a survivorship ‘club’ or whatever. Basically once you graduate to there you meet with a different nurse every year. I’m good with that. As long as they have specific training in oncology. The nurse I saw said she was happy I was seeing my PS a lot right now because she worries the first 5 years so with my scans this spring, seeing my pcp in the spring and my ps every month or two right now she’s confident someone will catch it early if it comes back. It’s nice to have a medical professional feel as I do about just checking to make sure it’s not come back! Moms cancer came back after about 6 years. Just after she stopped her visits. Technically I think her labs were messed up at her 5 year visit. They remind me I’m not my mom. However we looked like sisters, acted the same, had the same allergies, same cancer etc. So I have reason to believe I should be vigilant and keep on top of just being checked out. Anyway it was a good appointment and I should get a call about labs today. She wanted a vitamin D test and a cmp rather than the bmp the ps ordered before surgery. Said she wanted to check a couple things that shouldn’t be an issue but she just wants to double check. My kind of dr! Now if they’d just agree to a rumor marker test. But I forgot to ask when she started talking about the fluid build up. I’ll have to remember to ask my pcp next time she has me do labs. AND ou is finally getting on the same system as my other drs so they’ll finally be able to share information. It’s a pain to log into each different site and app so I can show them new labs and remember every date if every surgery each visit. Turns out the different systems can’t communicate and that’s why they keep blaming each other for not having the correct up to date info. 🤦‍♀️
121.4 lb Lost so far: 39.2 lb.    Still to go: 0 lb.    Diet followed reasonably well.

Diet Calendar Entries for 22 October 2020:
1807 kcal Fat: 96.94g | Prot: 88.87g | Carb: 142.71g.   Breakfast: Snickers Snickers Bar (1.86 oz). Lunch: Hormel Compleats Beef Tips & Gravy with Mashed Potatoes. Dinner: Popz Butter Microwave Popcorn, Del Monte French Style Green Beans, Pork Loin (Whole, Lean Only, Cooked, Braised) , Idahoan Foods Loaded Baked Flavored Mashed Potatoes. Snacks/Other: Great Value Sharp Cheddar Cheese. more...
1504 kcal Activities & Exercise: Apple Health - 24 hours. more...
gaining 1.7 lb a week

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Comments 
Sounds like it was a pretty good experience. So far so good! Increasing salt seems like an interesting suggestion. Not sure I have heard that before. 
22 Oct 20 by member: liv001
We are down to 1) my low sodium diet and 2) chemo messed up my blood vessels as the possible causes of my symptoms. I think it’s POTS and the oncology nurse agreed that it’s POTs or chemo but said salt was easy enough to check. My issue is that I’m just not used to salting my food now. I love salt so I think I’ll just start putting some on my tongue lol. My sodium levels in labs are 139-140 which is right in the mid range of where it should be. Of course the cardiologist said to cut out processed foods with sodium and add salt to ‘natural’ foods instead. That’ll just lower my sodium lol. 🤷‍♀️ Doesn’t really matter right now since I can’t lift or garden right now.  
22 Oct 20 by member: peeperjj
Vigilance is good. 
22 Oct 20 by member: Rosie We Can Do It
Ohhh on the lifting. That is a drag. I like salt with my sweets LOL.  
22 Oct 20 by member: liv001
I am glad you had a good visit and are keeping careful watch on things. Strangly, increasing salt is the suggestion my girl just got from her cardiologist. She has dizziness and fainting and low blood pressure. She rarely eats processed food and is in a habit of not adding salt to her food. Here's hoping and praying you continue to be cancer free! ❤️ 
22 Oct 20 by member: melissatwa
🙏 
22 Oct 20 by member: TomLong
Technically the plastics assistant said I could start at 4 weeks and work up and I’m around 5 weeks so I could lift but not much point in going and lifting 20# lol.  
22 Oct 20 by member: peeperjj
Thanks Guys. Melissa, that’s similar to my symptoms except I didn’t actually pass out. I’m able to sit down quickly enough that it doesn’t progress to fainting/passing out. That’s one thing they find odd. 🤷‍♀️  
22 Oct 20 by member: peeperjj
Tequila shots. great way to get your salt and tequila is a plant, so veggie. in all seriousness, your post reminded me that they actually prescribed my grandfather to take salt with all his meals after he began to suffer from low blood pressure issues in his 70's, so maybe that's not so crazy after all? He lived to 83, so something was working. 
22 Oct 20 by member: Katsolo
Hmmm would margaritas work?? My blood pressure is lower generally. Usually runs around 105-115/60-75. Yesterday it was 157/63!! 😳 I’ve never had it that high. Even in my stress test it only got to like 136/80ish.  
22 Oct 20 by member: peeperjj
Not a doctor, but alcohol is a depressant, so probably not unless it causes you to do crazy things like jump out of planes. That’ll get the heart racing, but hard to stop and get BP. 😳 Sounds like things are going generally well for you. Glad you’re keeping up with it all.  
22 Oct 20 by member: Katsolo
Swelling in lower extremities? Compression stockings of some type mild ones about 20mm 
22 Oct 20 by member: Kenna Morton
it's great you got a good team supporting you.  
22 Oct 20 by member: bearnoggin
Kat, that’s why I don’t drink usually. I have an addictive personality and it basically counteracts my antidepressant/anxiety pill. I do have one on occasion though as the dr said like one a week would be fine. I have like 2-3 every few months lol. Alls well on the health front :).  
22 Oct 20 by member: peeperjj
Kenna, no swelling. The cardiologist checks that when I’ve went in. I do have compression socks that hubby bought by accident so I tried those awhile back thinking they might help but no change. Maybe they only work on swelling. 🤷‍♀️  
22 Oct 20 by member: peeperjj
Oops that was suppose to be 20mmHg for the socks. So is the swelling in your atms. Refresh’s my memory— breast cancer? You said fluid build up. If not legs, in surgical arm? 
22 Oct 20 by member: Kenna Morton
I was diagnosed with triple negative breast cancer 11/2/2016. My fluid is in the right breast. We switched out a textured implant to a smooth one because of an increased risk of a rare blood cancer. The new smooth implant ended up getting an infection, well that breast not the implant itself. So we removed it. Took the JP drain out when the output was 10ml per day 6 days after surgery. For some reason I’m having fluid build up again in that breast, or lack there of haha. A friend said I’m doing too much but I’m doing very little honestly. On my phone, reading or watching tv like 12 hours a day. I spend around 3 hours a day doing laundry, cooking and picking up my oldest from practice. The rest of time time I’m sleeping or trying to sleep.  
23 Oct 20 by member: peeperjj
🍀 
23 Oct 20 by member: SB 428
Peeper— ok, so you have a seroma that has developed. They drain it and it returns. This is actually a not uncommon problem. Fluid build up in the dead space between the flap and chest wall. Limiting movement of the affected shoulder can help. Have the talked about Octeoride injections or compression dressing. Salt intake probably has nothing to do with it. 
23 Oct 20 by member: Kenna Morton
Kenna, the salt intake is for when I was seeing black spots and getting lightheaded at the gym. Everything got pushed back from this spring because of covid so they are doing everything at one now. It gets confusing! Lol. They told me to use compression but that’s a bit hard. The left side needs loose clothing and the right side needs compression. I tried a wide ace bandage but that compressed the left side too much. Now I just wear a sports bra with 2 foam prosthetics on the right side. It’s slowed down the fluid build up. But I have to take it off when the circulation on the left side gets worse. (Thin skin, very little breast tissue so very little blood flow around the left implant) They told me to be active but not to overdo it. I’ve experimented a bit and nothing I’ve done seems to increase the fluid so far. I’m right handed so I cook, clean etc with that side but I’m trying to do any lifting on my left ‘good’ side until I see the dr again next month.  
23 Oct 20 by member: peeperjj

     
 

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