Egull1's Journal, 19 May 2019

Week 34 of weight maintenance - Holding Steady --> The Brain is an Amazing Thing

My physical therapist took me "next level" last Friday and asked me to close my eyes and walk toward her (heel to toe) between the stability bars. I confess, part of me was thinking "holy sh#t!" on the inside. But, I also confess I've really come to enjoy these sessions. Both the physical therapists I've been working with (Vikki, and Amy) told me straight out, it was a challenge for them to come up with exercises that will keep me engaged as they're not used to working with a person at this level of fitness.

I closed my eyes, and started to walk forward. And, my oh my - I was wobbly as hell. But, I kept at it and tightened my core as much as possible. Vikki had just stated earlier how beautifully she thought my core engaged while having me do an exercise on my stomach where I had to draw in my abs and stretch out the quads. These two amazing ladies have been too nice to this girl's ego, lemme tell ya. LOL

"It really is amazing what you're capable of with the lack of sensation you have in your legs," she said.

I smiled and replied with, "Well, the brain is amazing thing!"

"You're brain is an amazing thing!" Vikki retorted.

I really don't understand how I do it to be honest. We know my brain is very rapidly mapping the movements they're providing. But, how is it creating the neural workaround so quickly? WHERE is the neural workaround? It's too bad MRI's can't map new neural growth.

I can now make the bosu ball do a 360 both ways doing a little "hula hoop" motion. I can step forward and back and side to side on the balancing board, which resembles a sea-saw. Unless you skate board - these exercises would actually be challenging for everyone, regardless of whether or not a person had sensation in their limbs.

Unless of course, you skate board or surf.

These movements take time to master, but my brain is mapping the motion in a matter of minutes. I start out wobbly and about 2 minutes in, something happens and my brain has already memorized where these legs are in space without having to feel anything but motion and pressure.

It's been frankly surprising all of us, but we're going with it!

I do try and empty my mind, clear my thoughts. I try not to think about what I'm doing if that makes sense. I imagine the energy inside me is working with energy outside of me and something just clicks. It's weird, because I'm observing this body react to something my brain is just doing without my control. But, it's wayeee cool!

I continued to wobble toward her, but she told me it was okay to do that and also okay to hold my hands out to steady myself. She also told me I can continue to practice in the hallway at home until my brain has mapped it. I'm already getting better.

This one seems daunting, especially because I'm walking with my eyes closed, but Optic Neuritis is actually one of the most common flare-ups an MS'er can have. The blindness is almost ALWAYS temporary and will subside, but it can take weeks or months. Knowing how to walk without sight and especially on feet that have no sensation is a critical skill to keep in the back pocket, know what I mean?

When I finally made it to wear she was standing, I opened my eyes and suddenly said, "Answer me this, why do I wobble so much walking forward, but when I do this...I'm absolutely fine?!"

I proceeded to close my eyes and walk backward without a single wobble, trip, or tumble. In fact, one would have thought I had eyes in the back of my head. I'm not sure why I did it, either. I just knew it was possible. I heard her say with absolutely surprise,

"I...I have no idea how you're doing that..."

We've decided next week will be the last session. There's no need for further sessions. I told her it will likely not be the last time in my life I'm in physical therapy. "And, hey" I exclaimed - "If I'm in a wheelchair the next time we meet, we already know what my strong points are and we'll know where begin. And, if I'm not we'll just take it to the next level wherever I'm at."

Below is this weeks trajectory. I ate well for my 2400 cal day last week. Lots of sugary carbs and goodies. I actually don't eat as many carbs as I'm allotted a day, because I'm so focused on getting protein in most of the time. But, it was nice to fill my plate with some sugary goodness.

I hope everyone is healthy, well, and enjoying Spring. Have a blessed week!

Until next time {{Hugs & Love}}

Monday - 1686 --- Target 1698
Tuesday - 1725 --- Target 1868
Wednesday - 1686 --- Target 1698
Thursday - 1964 --- Target 2038
Friday - 1698 --- Target 1698
Saturday - at Target 1349
Sunday - 1517 --- at Target
Average TDEE 1698
Current TDEE for the Spring & Summer = 1710/day

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Comments 
You are inspiring and amazing. 👏👏 
19 May 19 by member: FullaBella
You are doing great. Your attitude makes all the difference. You desire to be the best you can be and your willingness to bust your ass pushing the envelope to get it done is, well— getting it done. I am such a believer in aggressive physical therapy and it truly seems like you have found a really good group. They must feel very satisfied with their career choice after seeing how hard you work for yourself. 
19 May 19 by member: Kenna Morton
Egull 1, I am so proud of you and so honored that you have chosen to share your journey dealing with MS. I have a friend who was diagnosed at 21 and is still with us at 70. He has always kept a positive attitude and remained as active as possible as long as possible. My Stiff Person Syndrome has not stopped me and physical therapy was a blessing. I still do the exercises and more. I also had to teach myself to swim again after years of being a lifeguard in the summers. Who knows how our journey will progress, but I will take my inspiration from you and fight on, no matter the challenge. ❤️  
19 May 19 by member: Erquiaga
look at how cute. absolutely wonderful. God created you and he didn't make any mistakes. 
19 May 19 by member: lydium
Beautiful! ❤️❤️ 
20 May 19 by member: cookiekimchii
Amazing! Well done 👍 
20 May 19 by member: gaelicgal
Truly inspiring! You can do anything!! Amazing!!! 
20 May 19 by member: wifey9707
You are absolutely amazing🙋 
20 May 19 by member: Alnona
miracle woman 
20 May 19 by member: HCB
My apologies for telling some of my story during your emotional post. What you are doing everyday, is truly beyond belief and a credit to your strength, endurance, and a credit to how you are the embodiment of what can be accomplished while fighting MS. My love and prayers for you as you continue your battle. ❤️  
20 May 19 by member: Erquiaga
WOW! You inspire me! 
20 May 19 by member: kclab
Thank you, everyone - you are all too sweet! @Erquiaga - no need to apologize. I always welcome and enjoy the perspective and encouragement of others impacted by autoimmune conditions. Your input is greatly appreciated. @Kenna- the rehab center is St. Lukes and yes they are known to be one of the best in the nation. But, Vikki definitely let me know that she and Amy really enjoyed working with me. Besides, what other patient was going to force them to put their clip boards down and show me the proper form for a push-up?! LOL.  
20 May 19 by member: Egull1
Thanks for sharing your story, amazing.  
20 May 19 by member: adamevegod1
Beautiful! 😍💞 
20 May 19 by member: Keilin_4

     
 

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