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24 March 2011

Weigh-in: 187.7 lb lost so far: 19.3 lb still to go: 37.7 lb Diet followed 100%
   add comment losing 3.0 lb a week

23 March 2011

My doctor just gave me a good email lashing. I let her know of the recent deterioration and that I have not been taking the supplements because we ran out and they were more expensive than we could afford at that time. Boy she let me know that she is absolutely convinced that it is a mitochondrial storage disease because of my deterioration and not being on the supplements. Of course, to avoid further lashings, I did not tell her that I had not had them in months (probably 5 to be precise) and was doing fine up until 3 weeks ago... Boy she really would have let me have it. I didn't do it on purpose, but when you have to choose between 200$ for groceries for 4 kids or $200 for supplements, which would you choose? She reiterated that just because they are "supplements" and not prescription doesn't mean I get to just quit taking them... Once again, not done on purpose, but being disabled and waiting for your husband to get a job in law enforcement, which took a little over a year, made it kind of difficult to make the "supplements" a priority. Anyway, "Supplements" are ordered now and will be resumed once they get in.

You see, I could get them from Walmart,but one of them is only supplied in 100mg capsules at 16$ per bottle of 30 capsules. I take 2000 mg. That's 20 capsules. Seriously??? I just don't think so. So I order them off of ebay which has higher dosages as well as more dosages per bottle. I just ordered a bottle of 600mg capsules with 300 capsules in the bottle. It's ok if I take a little more, the body just pees it out, so I take 2400. That's still 4 capsules a day. Which means that 60$ bottle of capsules will last me at least 75 days. Which do you think I am going to do? Buy it for 16$ for a day and a half or buy it off ebay for 60$ for 75 days??? Hmmmm. Hard choice?? But, given that, no matter which way I chose, I still have to wait until we have money for the expense of both. So there you have it.

I guess when it comes in I will see if it makes a difference or if this "deterioration" is really from something else. My muscle biopsy did not show evidence of a storage disease. So I am not as convinced as she is.

Ok, done ranting for the night.

23 March 2011

22 March 2011

Ok, my band wagon is driving off without me!! You get it? Fell off the band wagon... Finding it hard to get back on....

I haven't let my eating go, so it's not like I have to start from square one, but this muscle fatigue and weakness is really keepin' a girl down, and I am having the hardest time figuring out how to get around it!!

I've come to realize that Kimber's appointment is just that. Kimber's appointment. She will be seeing the neuromuscular doctor, and while I may be feeling a bit desperate for a real name to all my "suspected's", the doctor is not going to take one look at me and her and go "I think you have...." If it were going to be that easy, it would have happened already. And seeing that her symptoms are a bit different than mine and we have some genetic anomalies on both family lines, she may not even have the same thing. So that's that. It hurts, I burst my own hope bubble, but better than having expectations of an appointment and being disappointed once again.

Ok, so I can tell that I have not completely fixed my emotional eating issues.. WHile I am not baking brownies, cookies and cakes, I have found a new love for Nutella, which has just as many calories if eaten inappropriately... All the stress from this flare up and her upcoming appointment is wearing me out, and I am still working on ridding myself of the emotional eating...

I was doing so good. Lost so much and have now hit a stall, for the last few weeks, for "stuff". I haven't figured out how to not let the "stuff" get in the way of my goal.

=(

21 March 2011

Weigh-in: 189.0 lb lost so far: 18.0 lb still to go: 39.0 lb Diet followed reasonably well
   add comment steady weight

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