Egull1's Journal, 05 October 2017

Homework assignment #1

Activity:
Question #1
What do I feel I'm missing out on with an extra 35.8 pounds on this body?

It's hard not to ponder answers to these questions without taking the MS into consideration. Movement is everything to a person with MS because it's constantly compromised, but it also runs a spectrum. Some days are less challenging than others. Stairs will always be difficult, but some days they're not as difficult. The same goes for walking up or downhill, and walking on uneven ground. But, my assessment is that all of the challenges that accompany movement and MS are further increased when the body has more weight on it to carry. As it stands, I rely a great deal on upper body strength to compensate for what these legs just can't fully accomplish. Will it be less challenging to do something as simple as stepping up the flight of stairs that leads from my suite to the kitchen, or picking myself up off the yoga mat after assuming an asana? Are their other activities that might be less taxing on this body like trail walks or any activity that includes long periods of standing or walking if this body is 35 pounds less than what it is now?

I know what 35 lbs feels like to lift. I used to have to put together 25-35 lbs worth of brochures together for one of the temp jobs I had a couple of years ago. Sometimes I was able to lift the boxes, but sometimes I had to heft them on to a chair and use the chair to roll the box to it's pick up location. LOL. In a weird way, I use my walker for the same purpose, only it's my own weight the walker is is hefting around. Perhaps, I won't even need a walker if I was 35 lbs less. Perhaps, a cane might be just as effective with less weight. Perhaps, there will be increased mobility?

At this point, I feel like it's a matter of comfort and trying to ensure this body doesn't have to suffer any more than it already has or is going too. I also consider the possibility there may be a time when I might have a care giver or someone to help me get up and around. Weighing 35 lbs less than I do now in addition to increasing muscle tone ensures anyone in the future will not have to strain as hard to help this girl out.

Question #2
What do I want the future to look like?

I want to discover and manifest joy and respect in the body this spirit inhabits. I remember when I was first diagnosed with the MS and I went to a local bar my mother and me frequent and saw an acquaintance who also has MS. In fact, he has the same kind of walker I do. I was sore from the last workout and he said, "why do you work out?! The muscles WON'T RECOVER!". This person chooses not to take any medication for their MS (with the exception of muscle relaxers) and does absolutely no exercises or stretching to help with spasticity. I respect their choice, but they are deteriorating rapidly and have already fallen twice, the first time they broke their elbow. He now suffers from tremors and constant muscle spasms. They were speaking an untruth regarding muscle recovery. One CAN workout with MS. The type of exercises we do just depends on what the limitations are, but any exercise out there can be modified and any fitness activity is VERY encouraged in the MS community. Finally he said, "what's the point of working out?"

I said, "listen, I've just taken off over 20 lbs and I'm DAMNED if I'm going to gain it back! I don't care if I'm using a walker or end up in a wheelchair, I'll just be the healthiest in shape disabled person you ever laid eyes on!!"

And, I meant it...

There are actually a lot of physically challenged folks where I live, and many are morbidly obese (in the 300-400 lb range). I won't condemn or judge, I can readily imagine the train of thought that brought them there. My own circumstances hit so suddenly, if I hadn't already been entrenched in a weight loss and fitness journey, working out and eating healthy might have been the last thing on my mind. And yet, ironically I understood even when the diagnosis was made official, it was going to be one of the most essential things to consider as I move forward. There's been an immense amount of joy, surprise, release, and genuine love in discovering what this body is capable of doing, even in its current state. I want to continue exploring, developing, and cultivating this body in a loving and kind light. It still has places to take this girl and things to reveal. I want to continue collaborating with all these cells, tissues, and organs to try an ensure we can function as optimally and realistically as possible, and with healthy sustainability in mind, regardless of what life throws our way. This is what I want the future to entail. This is what is starting to happen now :-)

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Thank you.  
05 Oct 17 by member: Happy*Snappy
" I want to continue exploring, developing, and cultivating this body in a loving and kind light. It still has places to take this girl and things to reveal. I want to continue collaborating with all these cells, tissues, and organs to try an ensure we can function as optimally and realistically as possible, and with healthy sustainability in mind, regardless of what life throws our way. " Life continually hides little gifts for us find in improbable places. You have discovered yours. Cut this out and put it somewhere that you'll see it everyday! 
05 Oct 17 by member: Horseshu1
Beautiful! Thank you for sharing your journey and thoughts. Inspiring indeed. Blessings to you ❤️ 
05 Oct 17 by member: ClarityAnn
You are genuinely welcome Happy Snappy! And, will do Horseshu! It looks like I have a few pledges to hang on my walls ;-). And, ClarityAnn I am humbly thankful you're inspired by these thoughts. 
06 Oct 17 by member: Egull1
I have "always" been fat I remember getting stretch marks as a young teenager, I was unafraid of the consequences rather unaware of the horrible mental trauma the insults spoken and not spoken just disquiet and obvious disgust by many, I was barely able to give a crap the world was cold and I weighed 350 lbs. Then I couldn't walk I did serious injury to my knee's this woke me up. I struggle everyday wanting to be comfortable wanting to regain and maintain any success and then sort of wanti ng to just let go eat whatever do whatever. I now weigh 170 lbs so not done nor satisfied it's taken so m 
06 Oct 17 by member: #1loser
anyway good job it is worth the effort congrats on your thinking you're inspiring!  
06 Oct 17 by member: #1loser
#1lose - 170 lbs is a wonderful weight. I'm look forward to reaching that weight as well. One of the things I've learned in this journey that is important to ask myself is, 1) What is my "enough"? Because, it actually may not be at all wrapped up in the number on the scale. In fact, for most of us it's not. Less weight may open the doors to those opportunities to cultivate "feeling enough", but I know it's not the only answer. 2) What does genuine "comfort" mean to me? And, 3) what are "non-scale" experiences that make me feel satisfied, without any suffering attached? Of course the answers to these questions are different for every single person as the need to be, but they're worth answering and keeping in my mind when we think about how we want to create a quality of life for ourselves. My heart is with you, likewise you are inspiring as well :-) 
06 Oct 17 by member: Egull1

     
 

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