Egull1's Journal, 23 January 2021

So far the data is telling me my "lows" fall on Wednesday, Friday, and Saturday. This is definitely different than when I first started this process back in 2017 where the scale lows consistently fell on Saturday & Sunday.

This is likely because my greatest cal burn of the week is on Tuesday when I do a 45 minute ride on the recumbent bike and usually burn up to 560-580 cals in a session. This is why I couch the highest calorie day of my weekly allotment on Wednesday.

Honestly, the morning after a 580 cal burn my cat starts looking tasty with some fava beans and chianti, LOL!

It's interesting to me that Friday morning is where I now hit the second low of the week. I usually couch weights on Thursday and back in the day often hit my highest weight of the week on a Friday, because of the inflammation.

Trust me, these glutes and shoulders can attest to putting in the work. But, I also find it absolutely fascinating that after weight day is now when this body feels the most limber and flexible.

And, no this was not the case 2 years ago. As one might expect, Friday was a "sore" stiff day. But, now lifting has the complete opposite effect. Even my right leg which is affected most by the MS with stiffness and spasticity is wayeeeee less stiff and I actually have increased sensation all the way down to my feet!!!

What is this madness! LOL - I'm not looking a gift horse in the mouth.

But, is it possible...can it be...that strength training and weights somehow increase the intensity of those electrical pulses between brain and spinal cord that help increase mobility and optimum motor function???

Obviously, it didn't happen over night. But folks, the difference in mobility the day after weights is really nothing short of astounding. Sometimes, this MS'er feels like she's got brand new legs the day after or finally let loose from being captive in stone.

The data on MS and fitness is so pathetically paltry. MS society just came out with "fitness" guidelines for MS'ers based on our degree and brand of mobility impairment. Apparently, I fall under 150 minutes/week for both functional and active exercise.

Err...This body has surpassed that by leaps and bounds.

2.5 hours of exercise/week?

That's like one day of resistance training for this gal.

No wonder poor Vikki at St. Lukes rehab center confessed she and her apprentice were having difficulty finding exercises to keep this body engaged because it had already far exceeded what they thought it capable of doing.

Do you know not even 20 years ago, Neurologists actually told their MS patients to do the least amount of exercise possible because they thought it actually worsened the MS.

It's true, symptoms can intensify in what they call a "psuedo flare" but it has nothing to do with the actual condition progressing. New lesions do not all of sudden start popping out of the woodwork due to physical exercise in MS.

The symptoms worsen simply because of the damage done to the central nervous system from the lesions we already have. Kinda like when someone's pet has chewed on a phone charger and the wire is popping through. Expose that charger too intense heat or cold and it's likely not to conduct a charge to well and your phone's battery will have a hard time getting the juice it needs to function.

And, yes it really is that simple when it comes to the damage incurred by MS lesions.

But, put that chewed up phone charger in a temperate environment and it will likely charge that phone up just fine, depending on the damage of course. Sometimes, ya just have to get a new charger or pull out the duct tape.

or in an MS'ers case - put the dang AC or fan on :-)

I chose a different route of course. Against, my neurologists suggestions I said, "To hell with cooling vests and fans...I'm leaning in." I subjected this body to 90 degree days with 20 lb weighted vests and subzero temps and cold showers, because I had already come to understand what apparently they don't teach folks in med school.

The brain and central nervous system are incredibly elastic. It can adapt and develop workarounds and actually carve out new neural pathways to get the job done.

It may take some time and the adaptation may not live up to the standard of "normal" the medical industry has drummed up, but apparently this body's adaptations were enough to challenge the knowledge, skills, and abilities of one of the most vetted MS physical therapists at St. Lukes rehab :-)

So, Imma keep going because so far, this body has proved to be a better trainer, coach, and rehabber when it comes to managing this condition than any specialist or PT thats been thrown its way.

And, if weights are what this body needs to feel limber and flexible - than weights it will have! :-)

If you can believe it, they just started doing research on the impact of fitness on MS patients about 5 years ago, so these new exercise standards are just a beginning and I am thankful they are now prescribing fitness be just as much a part of MS treatment as Big Pharma's experimental drugs.

It's a start...

However, I am down on my numb knees thankful on all that is holy I kept going and continued to do my own thing based on what this body reveals to me its capable of and from what I learned from my years studying brain theory.

That Grad degree came in good for something lemme tell ya!


Anyhow, time for breakfast! It's protein pancake day with taters! One of my favorites!

Have a blessed day, everyone!

P.S. Did you know butterflies are one of the few insects in the world that go through near complete cellular disintegration with just a few cells left over to help organize and transform their physical material so they can emerge from their cocoons as the beautiful spectacular creatures we know them to be.
112.0 lb Lost so far: 98.0 lb.    Still to go: 0 lb.    Diet followed reasonably well.
losing 11.2 lb a week

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Comments 
I enjoyed reading this! It's amazing to me and I am so happy for your progress. Very inspiring! I have scoliosis and my right hip is stiff. The thing that has helped the most...back squats which I was afraid to try at first. I wish there was more research being done on medical benefits of resistance training. 
23 Jan 21 by member: Mammajamma2.0
True inspiration is what you are. Honestly, you should go on the myo clinic website and share your experience. So many people with MS and other ailments can benefit. Just like all of us here. Or maybe create your own MS blog with similar exercises and teach women with MS how to navigate through the process. Many people once they get diagnosed, they become very overwhelmed with the disease itself and not realizing that there are things that they can do that Are proactive. You are truly amazing and I’m so happy that weightlifting has benefited your body to such a degree. Congratulations on all your hard work🎁🙏🥰🥰🥰 
23 Jan 21 by member: ocean_girl
You are an inspiration! 
23 Jan 21 by member: jeannieselby
Thank you, Jannie & Ocean Girl! And, Ocean Girl - a formal format has been suggested by others including my neurologist with regards to spreading awareness on different approaches to managing MS. I will expand a little later on why I'm sticking with this format for the time being ;-) But, thank you for your kind words and thoughtfulness. Trust me, this heart uses all that energy to keep progressing.  
23 Jan 21 by member: Egull1
And, Mamma - much respect you as well! And, squats are wear it's at! In fact, I will say out of all the suggestions I received from the time I spent with the rehabbers at St. Lukes - developing the core and glutes was the best advice I took away. The core and glutes are key to balance and stability in every person walking upright. There are muscles in both the abs and butt that can react immediately and strongly when we fall off balance and work to right ourselves. This is actually the number one reason many elder folks fall so easily. As we age our bone mass becomes increasingly compromised. If the muscle isn't there in those key places to compensate (like core and glutes), it increases the chances of falls and "hard to heal" injuries monumentally. I also have arthritis in the right hip joint in addition to wicked sciatica. Developing the abs and glutes through weighted squats, lunges, planks, push ups, L-sits, and weighted leg lifts & sit ups worked phenomenally in keeping this body balanced and avoiding falls on uneven surfaces like icy sidewalks and snow. I will say this - it took a long minute for this girl to learn how to engage the glute muscles (especially, with a numb bottom). As a result, I became what they call "quad dominant" in beginning. We had to get real creative at the rehab center to teach this mind how to actively engage those muscles. But, it was the weighted lunges that made all the difference. When I started incorporating lunges, I found the deeper the lunge, these glutes had no choice but to engage and I felt it! LOL. It was a game changer. Hip thrusters, and kettlebell swings have helped as well. 
23 Jan 21 by member: Egull1
I don’t know looks good to me 
23 Jan 21 by member: bryan77727
This is excellent! 💪🏻🏋🏻‍♂️ 
23 Jan 21 by member: davidsprincess
Again, a wealth of information! Funny, you mentioned cold showers..I just learned of this and am leaning towards trying it. My trainer ( bless her for always researching how to help me with my condition) stretched my hips out at last session. I was afraid at first cuz it was brutal but since then I have been able to squat with bar and weights. Take care and keep posting, you inspire me! 
23 Jan 21 by member: Diana 1234
I love all this information.  
23 Jan 21 by member: Katsolo
👋Egull, you.are.simply.amazing❣ Author a book...you would help SO many🤙 
23 Jan 21 by member: acomandr
Egull1 thanks for talking about exercise for balance in your comment section. I don't have MS but am 79 with big time back issues. I can't do all the things you mention, but it reminds me and encourages me to do more of what I can do. I have severe osteoporosis so would break easily in a fall. I so desire to maintain independence and have no one to help or take care of me. 
23 Jan 21 by member: Snowwhite100
Good post. 
23 Jan 21 by member: Kenna Morton
Agree with Acomandr. I’d buy your book. 
23 Jan 21 by member: GibJig
Thanks for sharing your journey with us. The butterfly is inspiring. 
23 Jan 21 by member: LaughingChevre
Thank you, everyone - I'm genuinely glad you enjoyed! When one starts this process you never really know what's going to surface or what the results are going to look or feel like. All I knew going in was giving up wasn't an option, consistency was key, and I needed a willingness to adapt when necessary in a way that served whatever goals had been set for this body's health and over-all happiness. However, 4 years in I can honestly say every part of this process has yielded gifts I never fathomed possible and a genuine feeling of thankfulness just to be alive and that includes all the challenges and obstacles that have popped up along the way :-) @Snowwhite-I can tell you right now my dear, when I was in the hospital with my first MS flare up, numb from the waist down, and using a walker - focusing on what I was able to do was the only "mantra" that went through this mind. I didn't allow one thought to enter this head about what I couldn't do. And, if I wasn't able to do something one way, I found another way to do it - Like taking that hospital issued stroller and walking a mile around the oncology floor in the morning and a mile after lunch to get steps in or holding onto the hospital room sink while I did squats. There are no limits as far as I'm concerned just workarounds. And, I can tell ya if it weren't for those modified workarounds, this girl would not have been able to eventually work herself up to 60 unmodified push ups with a 16lb pack strapped to her back :-) It taught me to keep in mind there are no such things as "big leaps" in this process, not if I genuinely wanted to manifest my goals. I've learned every small step I take is in effect "being" the change I want to see in myself and in this life. 
24 Jan 21 by member: Egull1
💗  
24 Jan 21 by member: davidsprincess
You look great. Your Dr should let you teach classes for other patients. Providing you have the time with your workout routine. Most important for you to keep taking care of yourself. You truly are a inspiration for all of us! 
24 Jan 21 by member: jushair
I think that the medical people are so used to non-compliant people that they assume that is all they are capable of. I find when I am doing proactive health things that my medical people are always shocked that I actually consistently do what I said I would do. I am shocked that it is unusual. I think the medical people set very low bars to try to get people to do something, anything!! General public have such crazy ideas about exercise - that it hurts, makes you more tired, and that being a weekend warrior (followed by a huge meal) is the way to fitness. Good for you for pushing the envelope and reaping the benefits. Thank you for your informative journal entries.  
24 Jan 21 by member: 59Carol
Thanks you for your post. It's educational, reveling and inspiring. You are one amazing woman... 
24 Jan 21 by member: John10251
You are awesome. 
25 Jan 21 by member: ladytanker

     
 

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