Twinieten's Journal, 07 April 2011

Big Ol' VENT-- Working full time.... how does anyone do it? You work a full shift, prepare a meal for your family, and do your daily housework so the place doens't go to hell in a handbasket. Somewhere in there, you have to find time to exercise, and of course, you need to make sure you are eating healthy. A visit to FatSecret has to be top piority.

I'm just getting back in to full time work after 10 years. Not only that, but my body is having to adjust to sleeping during the day and being awake at night. And even without considering the sleep reversal, there is just the issue of not enough hours in the day. I'm tired!

I worked a double shift on Sunday and seemed to have lost my progress right there. It kicked my butt. Normally someone working a double shift is put on the side of the building that has less people, and very independant people who are not as demanding. This time I worked the busy, demanding side for 16 hours. I'm thinking, no more double shifts for me. That was too much. I had a day off to recover before starting my new full time shift, and my body is still adjusting. Then along comes the TOM.

Yesterday, I had to be up early (ie, slept for 4 hours after getting home) to attend my son's IEP meeting. I'm still confused about this one. It depends on the day of the week, I suppose, he's either doing HORRIBLE, or he's doing WONDERFUL, depending on the needs of the staff. Do they need to make sure I'm aware he can't cut the proposed curriculum for next year? He's doing AWFUL! Lots of room for concern. I get all worked up and worried. Then yesterday, he's doing WONDERFUL! What an IMPROVEMENT! It's been 2 months. OK, he started meds, but still, could have have improved that much? Are we glossing things over so I won't ask for too much on the IEP? I'm as confused as a baby in a topless bar, I tell ya'!

Today, awake. Slept for 5 hours, woke up and that was it. At least I have tonight off.

I need to drink more water too.

-- end vent --

Now it's time to accomplish something instead of complaining about it. :)

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Comments 
Twin: sorry to hear you're having such a difficult time. As someone who worked as a therapist with people with developmental disabilities and other issues for over 10 years, I would highly recommend that you enlist the help of an outside agency for you IEP meetings. This can be arranged through your local Social Security office if you are in the USA and you should be getting some help for free. There are tons of programs that support these services, and hopefully you are hooked into the system and NOT just relying on the schools. A good therapist will at the minimum do a Vineland, along with some other assessments and give recommendations to the school. Though it's late in the game now for next year, it can still be done! :) They are absolutely allowed at the IEP's - don't dare let the principal or the any teacher tell you otherwise! Good luck! :) 
07 Apr 11 by member: AmethystM
Wow Twin... Yes, I can't imagine where you have time for anything! :( I have no idea what an IEP meeting is but it sounds brutal. It sounds like Amethyst knows what she's talking about where that's concerned so I hope it can be done. Honestly, on Atkins I wouldn't worry about the exercising if you're doing heavy cleaning and chores. Just make sure you're getting the right amount of calories in the right proportion and don't sweat the exercise (no pun intended LOL). You might want to try those resistance bands to do some resistance training. It's all about building the muscle so it burns up the fat faster. You don't need to run a 5 minute mile :-) My son is the most important thing in my life and I can not even imagine the worry and stress that all gives you. I find my peace in a higher power and it helps bring me immeasurable peace. Sometimes after a screaming tirade, but so be it :-) Do the best you can...that's all you really can do! D~ 
07 Apr 11 by member: deelytful1
BTW, I should say a Vineland was standard protocal several years back when I worked in Washington and Idaho. There may be a newer assessment tool now. ;) 
07 Apr 11 by member: AmethystM
You guys are wonderful! Thank you! My son was recently diagnosed ADHD, with Anxiety and Tourettes. Triple Whammy. Plus he has a learning disability. This school forced is to deal with it (not that they forced us literally, but more like the structure and curriculum of this school forced us to realize we'd done all we could and it was time to try a different approach for my son, so we had him evaluated). I would like to hire an advocate, but the meeting is right around the corner. I don't think she can go. I have to call her. She may be able to help us prepare, at least. I really feel quite empowered by the amount of learning I've put in to becomming a more affective advocate for my son, but I realise my need to please, and my preferred avoidance of confrontation are going to be an issue after our meeting yesterday. Venting helps. I will get back on track tomorrow. Deely, an IEP is an Individual Education Plan. This is what they do for kids with disabilities that require accomodations by the school because their disability affects learning. It would include things like dyslexia, or other learning disabilities, speach impediments, blindness or others.  
07 Apr 11 by member: Twinieten
I am proud of you for confronting it head on and not burying your head in denial. The sooner he gets the help he needs, the better. I'll share a story with you about why I am praising you.... My nephew's pre kindergarten teacher told my sister that she thought there was a problem and she should have hime evaluated (he's 5 now). Unlike me, my sister is all about what others think about her.. She has to have the best parties, best clothes, best KIDS! We were up there this summer (we live in FL and she in NY) and OMG, I could not believe how my nephew was acting! She justified all of it to say he was thrown off his "schedule" and was out of sorts.(hello, autism?) He has a bald spot where he constantly pulls his hair when he's watching TV and anxious and he does that fluttering things with his hands over and over (I know there's a medical name for this). She refuses to have him tested so he's not labeled as "special ed" in the school system and continues to amplify the littlest progress he is making in school now (like putting on his jacket when they go out to the schoolyard) when all the other kids have been doing these "normal" (for lack of a better word) things since day 1. She's also very proud at how organized and disciplined and smart he is! (again, can u say forms of autism?) But, his social skills are so lagging. He sits to the side of the schoolyard and when he does interact, it's generally in a negative fashion, especially when he's not getting his way. She is doing him so much harm but her own insecurities and hang ups (and I guess alot of every Mom's wishful thinking that "not my son")is keeping her from getting help. She is a stay at home Mom and hubby is making 6 figures, so why can't she get him privately tested? Why? Because she's afraid to find out the answer. Selfish. That's why I say I commend you and are very proud of you for doing what you have to in order for him to get what he needs. :-) You're a great mom. 
08 Apr 11 by member: deelytful1
Thank you Deely! Really, thanks!! Yep, sound autistic and that flapping thing... that's called a tic. My son has tics. He flapped for awhile. Now he scrunches his nose. I wanted to avoid the label for a very long time. This year I begged for labels. Now he's getting the help he needs, and I wish I did it sooner. I tried a few years back, but my insurance wasn't going to pay the tab and the school said they couldn't do anything (if only I knew then what I know now....)I wish your sister would get her son tested. Then he can have an IEP and they'll get him in therapy, work with him and he'll get what he needs. It's very sad. I don't know why labels are a bad thing, to be honest.  
08 Apr 11 by member: Twinieten

     
 

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