Miraculum's Journal, 09 June 2019

I've long had non-alcoholic fatty liver disease (NAFLD). With sun exposure, it's a risk factor for porphyria cutanea tarda, the skin-blistering condition on the backs of my hands.

It's not painful, just very unsightly, with multiple little scrapes and scabs and numerous healed-and-healing scars in shades from bright to pale pink. They're most noticeable under fluorescent light.

I read that oral supplementation with vitamins A, C, E, and beta-carotene can be helpful, along with SPF 100 sunscreen. I've begun these.

At least this condition won't make me fat!!

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Comments 
Small blessings, eh?  
10 Jun 19 by member: erikahollister
Mira you have so many health issues... Dr House could have had at least another season with you! You poor thing! 
10 Jun 19 by member: FullaBella
I read a study yesterday that said that yogurt was better than milk for nafld. Now I do not have an baseline to know how good milk was.  
10 Jun 19 by member: liv001
Bells, I am quite philosophical about the health issues I have. I know that most, if not all, are a product of my own behavior (poor dietary choices and lack of exercise) for many, many years magnified by age. I'd worked in the Social Security disability field for almost 30 years and understand that my conditions and limitations are minor compared with the suffering of so many people. I'm grateful that I have a wonderful husband who takes care of me like no one ever has. When I count my blessings, I come out on the "plus" side! 
11 Jun 19 by member: Miraculum
Well I'm proud of you for keeping a positive attitude. I'm more ostrich with my head in the sand. No telling what they'd find wrong with me if I let them test. I was always raised with the philosophy of 'unless you're bleeding from eyes or bones sticking through the skin... just walk it off'.  
11 Jun 19 by member: FullaBella
Bells, neither am I much of a "drama queen" when it comes to health stuff. My dermatologist noticed the scarring on the tops of my hands during an appt. and asked, "Don't you want to know what that is?!" Eh ... I replied, "Is it fatal?" LOL. She never mentioned the differential etiology (familial v. acquired liver/blood chemistry issue). I found that out by researching. (Horrors! A thinking patient!) 
12 Jun 19 by member: Miraculum
BTW, I love "House," and this skin thing is unusual but my MD and her associate diagnosed it by appearance. Confirmation requires testing a 24-hour urine specimen (everything for 24 hours!). I may ask her to do that, to pin down the best treatment. 
12 Jun 19 by member: Miraculum
You have good, observant doctors. I can't recall the last time mine even listened to my lungs or looked in my ears. If *I* don't mention it, they don't pay attention to it. 
12 Jun 19 by member: FullaBella

     
 

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