TheFlowerLady's Journal, 02 January 2018

I'd been having tests done over the last three years for extreme fatigue and what I thought were sudden drops in blood sugar amongst other symptoms. In May 2017 I knew I was heading into another poor health period when I suffered what appeared to be some sort of cardiac attack which resulted in my having six weeks off work before returning whilst still very poorly and having to move to a sitting down role. Palpitations and occasional heart pain, a weakness that made me feel overloaded with gravity and unable to walk without holding onto the wall. Two ECG's found nothing. Occasional low blood pressure but not every attack was accompanied by this. I also noticed how difficult it was to think clearly. As my initial symptoms started to settle I realised there was dizziness. My legs were very unsteady much of the time. Never one to really suffer much with headaches, I started to have a few fast moving ones which felt volcanic and I thought I could die. Fortunately, instead of an explosion at the end of each one, they imploded, leaving me very shaky and without energy. In August I suggested to my GP that it might be vestibular which he denounced, suggesting instead that I had neck tension! I went back in October and he saw how bad I was, (on a mild day) and thought it might be vestibular! After a bit of a weight due to two cock-ups at the surgery I was finally seen by a specialist who thought it was probably Menieres or Migraine Vertigo although Multiple Sclerosis a possibility. I had an MRI and heard back there wasn't a tumour or evidence of M.S scarring though that doesn't rule it out. I'm now waiting to be seen by a physiotherapist who will try to manipulate me to see if the balance issues can be sorted. My hand movements are fractionally off target, I sometimes feel mild tremors in my hands and have mild spasms in my left leg. I'm noting this down for my own future reference.
I used to walk to and from work then be walking all day, clocking up around 30,000 daily steps. Now I can hardly walk very far, (sometimes the trip to the bathroom from the bed is all I can do), occasionally my legs go completely and I have to have a wheelchair. I've always eaten too much and sadly one's appetite doesn't change if one starts using less energy. On top of this I felt the need for sugar fixes just to get me through to my next break so would buy sweets, cake, bread, whatever I could. I seldom found the strength to make healthy lunches so here I am, huge again. I'm going to try hard although my previous successful diet wasn't confused by having a man in my life as I now do and, although he also needs to lose quite a bit of weight, he isn't very focused and brings a lot of the wrong sort of temptations into the house. I'm weak. I'm human.
242.0 lb Lost so far: 0 lb.    Still to go: 89.0 lb.    Diet followed N/A.
on diet TheFlowerLady's own diet   gaining 1.8 lb a week

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We're all here for support just ask if you need something! Good luck with your journey! 
02 Jan 18 by member: 8Patty
Do you know what your ejection fraction my be at this time? some of your symptoms sounds like what I was going through,mine was very low but l managed to get my heart rate up to 55% your weight doesn't look obese, mine wasn't either.I'd ask about that test. Good Luck to in your journey, remember we are here to help. 
02 Jan 18 by member: murphthesurf
Mercy - just let us know HOW to help you out. We can provide all kinds of guidance and advice, but until you share what you need (or need to be able to do), we will be here for you, okay? 
02 Jan 18 by member: From371to184
We're here for you! Took 4 yrs for my diagnosis, I figured it out 1 yr before the doctors did and had to insist on tests. All doctors are human and they only know what they know. They use their medical knowledge and reported symptoms along with test to diagnose. They aren't always right. I was told by many doctors for years that I didn't have a thyroid problem, and you know what? I had a thyroid problem the entire time. The tests they did were the most common but not the best ones. Having been an athlete most of my life then within a couple yrs I was struggling to go up and down stairs. With so many issues you should definitely look more in autoimmune diseases. MS is autoimmune but there are more. We have to be our own advocates!  
02 Jan 18 by member: t_ann19
Wow, it sounds like you've gone through a lot! My husband's cousin and my cousin both have MS and it took them years to get an official diagnosis, they have been able to manage some symptoms through diet. I can't imagine what you've gone through! Hopefully 2018 will be the year of an official diagnosis and you will find some things that will help you feel better, whether that's mentally or physically, but hopefully both. 
02 Jan 18 by member: mars2kids
Don't give up hope... you are stronger than you think. You're definitely not alone here ❤❤❤ 
02 Jan 18 by member: thsiun
I have a slew of chronic health issues resulting in pain, weakness, fatigue, etc... I understand and relate to your entry completely. If you ever want to talk send me a message on Facebook messenger. Claudine Noriega in Tampa, FL. I have Fibromyalgia with inflammation and auto-immune features and my best friend has MS. Somehow just talking to someone who knows is extremely helpful because if you haven't experienced it you just can't understand it the way people need to be understood. I am pretty sedentary and I am still able to lose weight. You just have to figure out what will work best for you. I recommend keto. The protein keeps me full and sated for longer than a carbolicious meal. Also once all the sugar was out of my system I was suddenly much less ravenous. Also, a physical therapist can teach you how to exercise your body and get stronger while laying in bed. I'm not there yet but it's my 9 month goal. Anyway, I hope that you find a doctor that ends up being your unicorn and helps you to navigate through this difficult time. Good luck to you. And contact me anytime if you want to talk. Hugs.  
03 Jan 18 by member: claudine.carver

     
 

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