Miraculum's Journal, 24 October 2017

Please share my story as a cautionary tale...

I need surgery to rebuild my right foot due to advanced neuropathy (first diagnosed in 1992, at age 37) with considerable bony disorganization and destruction. The condition is called "Charcot [SHAR-koh] foot," an advanced complication of neuropathy.

Because of the neuropathy, Charcot patients suffer relatively little pain, a mixed blessing because it allows denial of the serious nature of the disease.

MDs were not using the hemoglobin A1c test for type 2 diabetes mellitus in the early 1990s. My fasting glucose numbers (a "snapshot" test) were a bit high but still WNL, but that test doesn't evaluate the response to carbohydrate consumption. It's *much* less accurate than the A1c, which reflects a 2-3-month average of the percentage of glucose sticking to the red blood cells. 

After negative EMGs and nerve conduction studies, a neurologist could offer no cause for my "idiopathic cryogenic peripheral neuropathy." It progressed over the next decade. 

I was finally diagnosed with T2DM in 2001, when I was 47 years old, with a fingerstick blood sugar reading of 535 mg/dl. (That's not a typo.) My weight had topped out at 285 lbs. at that time. Over the next three years, I lost 75 pounds, then regained 25. I lost 20 pounds with FS help over the summer and, right now, I'm at a 70-pound net loss since 2001. (At 5'9", 168 lbs. is a "normal" BMI of 24.9. That's my present goal.)

I was a rebellious diabetic, eating whatever I wanted most of the time in the years since my diagnosis. My A1c ranged from 8% to 10.4%. (Below 5.4% is normal.) I was headed for disaster. (Fortunately, I have no renal or retinal complications, and only early circulatory issues.)

My summer dieting effort took my A1c to 5.3% within one month, then I fell off the wagon. It's back up to 9.3%. The surgery can only be performed if my A1c is 8% or lower. I know what I must do, and I have 6-8 weeks to "make the grade."

I WILL DO THIS.

The ortho-surgeon must reinforce the metatarsals with steel rods and pins, and then those structures and the cuboid and navicular bones in the foot will be fused to the tarsal bone. This is extensive surgery. A very long (6+ months) recovery and rehab will prevent even stationary biking and lap swim.

If the fusion heals solidly [the 85-90% success rate is *scary* to me; the lower the A1c, the better the outcome], I'll have no ROM from the ankle down, except for toe-wiggling, but I'll still have my right foot.

I WILL DO THIS.

So, now, *everything* I put in my mouth will determine if my foot can be saved. It's this ... or eventual amputation.

I thought I would travel the world in my retirement. All that walking is definitely out.

PLEASE: Share this story (but not my real name). If it encourages one person to be healthy or get healthier faster, there will be some benefit to the world.
215.5 lb Lost so far: 69.5 lb.    Still to go: 47.5 lb.    Diet followed reasonably well.

Diet Calendar Entries for 24 October 2017:
1026 kcal Fat: 42.40g | Prot: 55.64g | Carb: 103.37g.   Breakfast: Green Giant Hass Avocado. Lunch: Boar's Head Maple Glazed Honey Coat Turkey Breast, Carrots. Dinner: Pork Loin (Tenderloin), Birds Eye Steamfresh Premium Selects Brussels Sprouts, Stop & Shop Baby Carrots, Choceur 49% Cacao Dark Chocolate. Snacks/Other: General Foods Suisse Mocha (Sugar and Caffeine Free), Great Value Half & Half, My Essentials Ice Cream Sandwich. more...
3182 kcal Activities & Exercise: Watching TV/Computer - 4 hours, Resting - 10 hours, Reading - 3 hours, Sleeping - 6 hours, Driving - 1 hour. more...
on diet LCHF: Low carb, High fat / Ketogenic Diet   gaining 13.3 lb a week

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Comments 
Miraculum, Thank you for your story and your words of caution for others. Yet, we as humans seem to have to learn by our experiences instead of listening to the wisdom of others who have already walked that road. I wish you the best. And, YOU WILL DO THIS. Take care.  
25 Oct 17 by member: ginger dog

     
 

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