DCDesigner's Journal, 13 December 2017

I'm running on empty today. I've been sobbing in my office since the phone call from my son's school today. I've been receiving daily phone calls for the last 2 weeks from my son's special needs school that he has either left the property, or destroyed property or had an emotional storm, or made a self harm statement. We were trying an experiment to have him attend school for an half day, and then receive at home tutoring support for the other subjects. The school reports that the experiment has been a failure and that if anything his melt downs have increased. We on the other hand are not experiencing any issues at home. He is compliant, and doing work with his tutor and homework with us. The difference with school and home is startling. He has extreme social anxiety and mood disregulation. At school he is bombarded with triggers throughout the day. At home he feels safe. The school he attends is a private school for students with special needs and is paid for through FAPE, but I am really depressed that even they are scratching their heads because none of their interventions or medication or behavioral intervention have seemed to helped with his school avoidance and meltdowns. I am a full-time working Mom who brings in the income and carries the health insurance for the family, so I can't even consider homeschooling. I just so frustrated that the "professionals" can't seem to quite grasp what is going on with my son. We've gone through an alphabet soup of diagnosis, treatments and medicines to no avail. And we are off again to Children's Hospital to rule out neurological causes.The EEG's and CAT scans never show anything abnormal. Here we go again.

Diet Calendar Entries for 13 December 2017:
1085 kcal Fat: 27.38g | Prot: 61.16g | Carb: 157.14g.   Breakfast: Bananas, Coffee, Great Value Fat Free Milk, Slim-Fast Shake Mix - Chocolate Royale. Lunch: Atkins Meal Chocolate Chip Granola Bar. Dinner: See's Candies Dark Chocolates, Lean Cuisine Marketplace Chicken Pecan. Snacks/Other: Starbucks Cappuccino (Grande). more...
2246 kcal Activities & Exercise: Driving - 1 hour, Desk Work - 6 hours, Resting - 9 hours, Sleeping - 8 hours. more...

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I can offer you nothing but hugs. I'm so sorry you and your son are having to deal with this. It is so very hard. My son has pretty severe ADD so I know a little bit of what you are going through. He is 21 now and things are a lot better. Still a struggle but a lot better. Xo 
13 Dec 17 by member: 2426girl
been there...not easy...im still not you though, maybe you could try going to school with him! be there but not number one care giver just so he can feel safe with new care givers and when he's doing well maybe leave the class room for 10mins then 20mins then 40 mins coming back if he start to get upset, what ever you do be proud that your good enough to have he's trust that is so hard to get if you loss it. big hugs dot you hang in there😎 
13 Dec 17 by member: Steveswifey

     
 

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