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The past week or so has been emotional and stressful mixed in with good days and I am hoping and praying my son has a good day at school. IEP, crisis plan and behavior plan and positive incentive/rewards are in place and we had to already use the crisis plan yesterday to get the behavior incentives and goals completed. He is not happy that getting game time on the Ipad at school is not on the table thus he went into shutdown and quickly followed with fight or flight... which was flight only this time, so at least there were no major school consequences on day 2 just getting him back safely and into a more logical and receptive mindset to the options they presented unless he could come up with better ones. *Here's to getting through the day with success for my son.* Which means staying in class and on task... things he was refusing to do all day yesterday. They are issued the Ipads today thus the push yesterday to get all plans in place. As for me, I stayed on plan though I thought a lot about straying but I know I would only be worse off and in a bad mental place for myself if I did so. I even was under on intake because I was so strident in not folding under the stress and desires for comfort I felt. Last night was better kids were both asleep by 9 and we had no issues with staying up too late. So hoping better sleep for them (esp my son) means a good day in school. I am fairly sure that impacted his day yesterday as well. I know my lack of sleep impacted my critical thinking, coping abilities, and my ability to focus on tasks at hand. It also impacted my energy to want to do things. It felt like a do nothing day was all I wanted to do and all that I accomplished was coping and dealing with my son. I did not walk yesterday and today when my husband and I dropped the kids off at school I walked home which is about half of my usual route. I usually do not join in the ride to school but today I wanted to connect with the new VP and the Special Ed teacher so that we could touch base on the behavior plan before my son would make his final choices on incentives. Maybe I will walk again this evening providing we all have a good day. I am keeping today's goals simple and on point of not pushing myself too far knowing my stress level is already still on panic mode and trying to gear it away from that. Support, smiling faces and prayers are all welcome. Goals: - adding new shipment items for convention (4 pages) may take 2 days - walk ( 1.5 miles done) - plan and cook dinner - stay on plan - remain focused
Diet Calendar Entries for 04 September 2015:
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1107 kcal
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Fat: 80.56g | Prot: 64.43g | Carb: 38.32g.
Breakfast: Centrum Multivitamin/Multimineral Supplement, Atkins Mocha Latte Shake, Member's Mark Omega 3 Fish Oil (1000 mg). Lunch: Great Value All Natural Sour Cream, Sour Cream, Taco Bell Border Sauce - Fire, Guacamole (Spicy), Tomatoes, Egg, Market Pantry Finely Shredded Mexican Style Four-cheese Blend Cheese, Great Value Bottled Water, Lipton Cold Brew Tea Bags (Glass Size), Butter. Dinner: Butter (Salted), Cooked Broccoli (Fat Not Added in Cooking), Cooked Cauliflower (Fat Not Added in Cooking), Roasted Broiled or Baked Chicken Thigh (Skin Eaten). Snacks/Other: Peanut Butter Fat Bombs SIMPLE, Great Value Bottled Water. more...
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3568 kcal
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Activities & Exercise:
Housework - 2 hours, Walking (exercise) - 3.5/mph - 35 minutes, Watching TV/Computer - 10 hours, Resting - 3 hours and 25 minutes, Sleeping - 8 hours. more...
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 Comments
Please, please, if you love your son, take away all products with wheat in them You will notice a difference in his behavior within a short time. They are poisoning us with the genetically modified wheat in food today. it changes your entire brain function. I have a son who is schizo affective bipolar, and there is a definite difference in his ability to cope with he slips up and eats bread again (aka pizza, hamburger, etc.) I myself suffered daily from suicidal depression until I stopped with the bread. Do worry, you can get great gluten free bread at Aldi's that to me is better than wheat bread.
04 Sep 15 by member: SheaDlady
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I sooo feel for you. The first 2 days were a mess for us too. To add to it for some reason the school wants to use as as a training resource for celiac and gluten free diets. Not only can they not seem to get their act to together, they want me to teach them..for free..in my SPARE time....seriously we can't be their first Celiac family, can we?
I kept them all home today so we could get an earlier start down and try to de-stress before we get there. It will probably bite me on the butt throwing routines out the window and letting them have fun fr two days, but we only see the NYC family once a year or so. Their daughter has Rhett's and the wee one has PDD-NOS so they don't travel much either. It's so nice to hang with people who just get it, and to be able to talk about IEPs and therapies and BHP's without them getting that glazed look in their eyes lol.
Anyhoo, hang in there. You are doing all the right things and are a super parent. ((hugs))
04 Sep 15 by member: nicholaix
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I agree with the idea of modifying your son's diet if at all possible. This is based on reading and real life examples of some of the children I have worked with in my practice. Sugars and wheat are the biggest culprits. In fact, ketogenic diets have been used to treat autism spectrum kids, and Alzheimer's sufferers.
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My son's barely hits the Autism scale hitting at the ranking of 30 very high functioning and has been advanced a grade in school already. His biggest issues at age 12 are self-regulation. He handles most social cues well. And he has no real communication issues until his frustration tolerance level is hit and he begins to shut down then ceases to communicate, even make eye contact which is when he needs a minute sometimes 20 to get back to a better state. Sometimes that turns around and things are suddenly right as rain again or you will sometimes see a wariness still there if he is still uncomfortable at all. Most people knowing him have no clue unless they are told. 90% of the time redirection is all that is needed. But with puberty we are seeing changes and he's obsessive about video games. Which is becoming the increasing problem with self regulating and not *stealing* time on them.
04 Sep 15 by member: Pterath
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OK I'm going to point out that yesterday I expressed confidence that you would not go off diet and I was right! You are a great mom, you deal with your challenges very well, and when you are venting to us that is all you need to do. I'm incredibly proud of you and in particular with how you handle all your challenges! Great Job Kelly!! :-), :-), :-) Yes I pray for you every day!
04 Sep 15 by member: spiritspell
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Thanks for everyone's input I will go with the guidance of my son's Dr/psychiatrist/and therapist but the topic will be broached before I totally start changing things that will be a very difficult path as food is a major focal point for my son but I try to direct him to better choices I am not with him 100% of the time. Thank you for your continued support, prayers and thoughts it makes me feel cared for and I take your concerns to heart. I feel bad that I have not thanked you all more or have lent as much support as I usually do because my load has been heavy as of late. Tomorrow, I hope we all get up on the right side of the bread.
04 Sep 15 by member: Pterath
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You are awesome and a wonderful mother. If you need to you can lean on us. Sometimes just venting can help.
04 Sep 15 by member: RoseFlorida
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You are doing great, I hope your son had a great day at school so that you can start to relax. I hope you have something fun planned for this 3 day weekend!
04 Sep 15 by member: skwhite
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He did have a great day today and it made a big difference for him, his teachers and the rest of the family. I am going to crash tonight after a long day but definitely not as stressful as yesterday.
04 Sep 15 by member: Pterath
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