IBS or Celiac

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Joined: Mar 10
Posts: 25

Posted: 31 Jul 2013, 11:52
Help requested...

I was diagnosed with IBS years ago and was told to stay away from lentils, leafy green veggies, carbonated drinks, etc. Funny thing is when I'm low carbing, leafy green veggies don't bother me. I also don't have IBS issues with low carbing. Immediately after and sometimes while eating sugar and carbs my symptoms begin; bloating, stomach cramps, extreme gas, tiredness, irritability, and more.

When my cousin was diagnosed with celiac disease a year ago, I started reading up on it to help her mom. Boy was I surprised to learn IBS and celiac have many of the same symptoms. Now, when diagnosed with IBS its recommended tests are ran to rule out celiac disease because many people were miss diagnosed with IBS when they truly had celiac disease.

I want the test done but don't want to go back to eating carbs. All the websites say don't change your eating habits before being tested because it could affect possibly having a positive test result. I have been on Atkins Induction phase for a month now.

I hate they way carbs and/or sugar make me feel. Don't know what to do... *sigh*
Elizabeth V

Joined: Oct 10
Posts: 84

Posted: 01 Aug 2013, 06:34
Hi SoccerMom, I too have IBS...for years now. The best thing you can do is keep a daily food journal. Everyone has different triggers. Foods and vitamins/supplments have different reactions for different people. In addition, I take miralax everyday to help draw water to my intestines and I drink a lot of water throughout the day. you will have to find out what your triggers are. Once you do, you will be able to eliminate them and feel a whole lot better. good luck Elizabeth V.
I also have many gluten free recipes you may like to try on my food blog at: www.2sistersrecipes.com. enjoy

Joined: Mar 10
Posts: 25

Posted: 01 Aug 2013, 07:43
A little reluctant about this but I'm going back to my old WOE for 12 weeks so I can have the celiac tests. I've known for years that low carb is a great WOE but when I began eating LC a month ago, I set out to prove or disprove to myself one thing; will cutting carbs and sugars control and/or eliminate my IBS issues. I proved both. The funny thing is when I eat LC; I have NO issues with IBS. Odd considering the foods I eat while LCing are all foods I was told to avoid. My IBS flares up when I eat carb or sugar loaded meals and the flare up is almost instant. I will endure these next 12 weeks (gluten challenge) to have these tests. With celiacs being an inherited disease and my son having similar issues with his gastro system with the same foods as myself, I need to have these tests.

Joined: Aug 12
Posts: 1,286

Posted: 01 Aug 2013, 09:01
A lot of people with IBS find that when they go strictly gluten-free, their IBS symptoms disappear and never come back, even if they have tested negative for celiac. The fact is that the tests have lots of false negatives, and they don't necessarily show whether you are gluten intolerant, which would also mean you need to give up gluten.

I realized some years back that I am gluten intolerant after deciding I needed a break from carbs for a couple of days (I had been hitting the artisan bread quite hard). I woke up the next morning with no pain, and I have not eaten it since. Since I was not tested at the time, the possibility exists that I am celiac, but I see no reason to pay oodles of money and go through months of discomfort eating gluten when I don't intend to ever eat it again anyway.

It's also a possibility that you may be intolerant to some other grain or starch you give up when you go low carb. Lots of people who are gluten intolerant get the same symptoms from oats, corn, and other common grains. And of course, there are people who are fructose intolerant, which you may be.

Joined: Aug 11
Posts: 298

Posted: 03 Aug 2013, 06:35
Hello! I was diagnosed with IBS many years ago. At that time I was also told that lactose was my main trigger. So through time I have cut that out. However I now find that too much refined carbs are having the same effect.
Thanks for writing your post it was very informative.

Joined: Apr 13
Posts: 57

Posted: 26 Aug 2013, 05:49
Hi Soccermom...I know exactly what you are talking about because I have Crohn's Disease. Low carb has been an answer to my prayers. My only BRoom problem on low carbs is NOT going enough...none of the other horrible symptoms of Crohn's. I also try to eat my total food intake for the day by 4:30pm. This seems to do away with some of the night time problems. I dont know the answer or the reasons why LCarbs seem to help, but Im happy. Good luck you, stay strong...

Joined: Jan 13
Posts: 1

Posted: 26 Aug 2013, 07:42
HELLO Soccermom, I had IBS and then later diagnosed w/celiac. I try to stay GF, yet haven't always due to the expense of all the gf items. I would suggest getting tested, that way you will know for sure. If I eat ANY breads (other than gf), pasta I experience many stomach/bowel problems. I would talk to my doctor and see what he/she says. If your off the carbs and still having problems; if off the carbs and not eating gluten ( which is found in so many foods plus) and feel fine then you are eating properly for a person w/celiac... Best Wishes for you !!

Joined: Mar 10
Posts: 25

Posted: 03 Sep 2013, 09:07
Latest update.... Went to see a GI but was not impressed at all. He dismissed the celiac and pushed Crohn's and Fibromyalgia. He told me that Celiac was not my problem. When I tried to explain while eating low carb all of my symptoms disappeared, he shrugged it off. He told me I was probably lactose intolerant. Funny thing, when I drink milk by itself, I have no issues but if I pour it over a bowl of cereal, that's when the gastro issues begin. He wanted to do a upper and lower GI but I decided before I went threw those tests, I would try some tests of my own. First his lactose intolerant test of drinking a glass of milk first thing one morning. If my gastro issues showed up within 2 hours after drinking the milk, I was lactose intolerant. I did the test and had no issues. I'm not lactose intolerant. Second, I would try eating gluten free. I'm still reading up on the gluten free but I have chose to eliminated as many carbs as possible (breads and pasta). The only carbs I'm eating are coming from fresh fruit and my greek yogurt and so far today my gastro issues are not present. Maybe I should listen to what my body is telling me and some doctor I didn't like.
Mary in LA

Joined: Apr 09
Posts: 27

Posted: 03 Sep 2013, 13:08
Yes, exactly! Do what's right for your body. Doctors are only human and have biases like everybody else. This doc may want to diagnose you with an illness he thinks he can treat successfully. Nobody likes to fail, least of all doctors, who tend to be more arrogant than the average person (I say this in the nicest possible way, as someone who has at least one MD and/or RN in every generation of my family!).

IMHO, some degree of arrogance is required to be an effective doctor, especially a surgeon, because surgeons have to believe, firmly, in their hearts, that they have the knowledge and skill to pick up a knife and cut a person wide open, and not only not kill them, but actually *make them better*. Seems to me that takes major chutzpah! Smile

That said, since this particular gastro doc isn't listening to you at all, maybe it's time to find another one??? Best of luck to you, whatever happens!

Joined: Apr 12
Posts: 11

Posted: 11 Jan 2014, 10:22
I, too am a sufferer of IBS (with diarrhea) since the age of 14, however, my trigger is not wheat or gluten as I previously thought but whey. Lactose will cause a delayed reaction but whey causes an immediate reaction. I am returning to the Atkins plan but it is hard when you cannot use products that contain whey. I work in healthcare and unless you like throwing money down the proverbial toilet, I would suggest the tests are unnecessary unless you need the diagnosis for FMLA or monetary subsidy. You should listen to your body, I didn't and it took 2 months before I figured out the trigger and luckily my doctor listened and ordered the minimum tests necessary to confirm the diagnosis of a milk protein allergy. Good luck in your endeavors to be healthy and feel great.

Joined: Oct 13
Posts: 4

Posted: 11 Jan 2014, 10:51
I have done extensive research on gluten and celiac disease as many of my close family members are celiac. Gluten is not tolerated by many people, being intolerant and having celiac are different things. If you are a celiac wheat can put you in the hospital if you eat it, my sister can't even eat grain fed meat. Roughly 17% of the population is gluten intolerant and doctors prescribe drugs to treat the symptoms from GI problems to arthritis. If you feel terrible when you eat wheat DO NOT EAT IT. Refined sugar is also an issue that falls into the same type of category; we've known processed sugar is bad, processed wheat is bad too. A body that does not have inflammation does not have symptoms and is happy. Doctors cannot diagnose intolerance, the reaction is not like an allergic one, but a slow build up in ones system does cause an autoimmune response.

Joined: Feb 13
Posts: 1

Posted: 12 Jan 2014, 09:51
SoccerMom-I was tested for Celiac disease (because I was spilling so much calcium) and the results were negative. However, when I am eating low carb, I feel so much better, especially with the bloating. If eating low carb makes you feel better, just do it. I'm not going to worry about what the doctor says about it.

Joined: Apr 13
Posts: 57

Posted: 14 Jan 2014, 06:01
Along with the calcium in your blood work being high, are you tired all the time, NO energy at all? Im' certaintly not in the medical field, only speaking from experience. This happened to me and it turned out to be one of my Parathyroid glands. They are tiny glands in the thyroid that control the amount of calcium in the blood. If the problem consist at least ask your Dr. about this. Just a suggestion and I do hope your problem is soon solved.

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